Well it's been a little while since I updated the blog. That little thing life sometimes has a habit of getting in the way. Not that I do that much you understand, but what I do do, takes up a lot of my time.
So what's been happening you may ask? Not a lot is my answer if I'm honest. Niamh is managing 4 lessons per day at school which is great, this equates to about 2/3 attendance. Not bad really, she's going to all the essential core subjects plus the ones she's chosen as her options. She can't do PE anyway and other ones she misses are the likes of PSE and IT which aren't essential to her. All in all, attendance for the important subjects is very good.
She's had another clear chest x-ray which is always fantastic because its always a worry every month when we go to get that. Thankfully Dr Edgar usually gets those results out of the way straight away and once those formalities are dealt with she moves on to getting her ear bent by Niamh. This clinic appointment sometimes can take an hour - Dr Edgar is very gracious and listens to everything Niamh says, never rushing her. If she gets sick of Niamhs chit chat she never let's on.
So, yesterday Niamh had gone out with some friends shopping and to Pizza Hut - she managed to fleece £20 out of me for this promising she'll give me the change. Oh that'll be the non existent change that will not materialise I should imagine. Still, she doesn't go out much and we always love when she spends time with her fab friends so we don't mind the £20. However I shall not be matching that with £20 worth of Match Attax for Conor.
We had some great news yesterday, Niamh's Make A Wish request has been approved and now we are booked to go on a Disney Cruise in August. This is an amazing once in a lifetime thing for us. I'm not sure if I've previously mentioned this on here but, when Niamh was on treatment, she kept talking about how she wanted to go to Rome, it is her dream. She wants to see the Collosseum, throw a coin into the Trevi Fountain and soak up the culture there. I made her a promise that we would go when she was better, not knowing if we'd be able to but hoping that we would. Believe me, some of the conversations you have with a teenager when they are seriously ill, life threateningly so are heartbreaking. After our umpteenth time of "the Rome" chat, Niamh fell asleep and reflective me cried myself to sleep next to her. I wanted to take her there so badly, but looking at her - she was so ill. Part of me often wondered what the future held for us and her. This time last year we were told that the chemo wasnt working on the tumour at all, there was no change in it whatsoever. Imagine being told that - you can't possibly imagine the fear you get as a parent when you hear those words. My over active mind would often end up in a very very dark place after midnight. Places that I certainly don't care to revisit ever. However much I tried not to, it was always inevitable. I would usually be awake because the ward was never 100% quiet. Sometimes on treatment, it's hard to think past the next day or even the next couple of hours because its so scary. We spent our time often making plans of holidays, talked of Thailand, Italy, California and Australia. Planned road trips, visits, pit stops, meals out and flights, anything and everything got discussed when Niamh was on treatment. The whole uncertainty that cancer brings is terrifying. So, when Make A Wish contacted and told us to start thinking about a wish for Niamh then it was hard. Niamh had a few ideas, one was to meet The Rock ( that's a wrestler/ actor for those who don't know). Another was to meet the cast of The Big Bang Theory ( her favourite US comedy). I attempted to influence her slightly by suggesting perhaps she could meet Johnny Depp ( but she didn't seem too impressed by that idea - nice try mum). Finally, she said she'd like to go on a Disney Cruise so Conor could enjoy it too (typical nice Niamh). So that was what she wished for and it's been granted. The "fate" part of it all is that part of the itinerary is Rome. So, we are definitely going there. We've taken the kids to Italy before twice, we all adore it there. It's beautiful, scenic, great food, fantastic vibe and lovely people - a perfect place and a favourite of ours. I'm sure I shall be an emotional wreck from start to finish. The trip feels so poignant for us, a triumph, a fufilled dream, a bucket list item for Niamh. Because, yes, on treatment she made one of those too.
I'll be sure to take plenty of photos of our once in a lifetime dream trip round the Med, I'm sure we'll make fantastic memories on this one with Mickey Mouse and Co.