Good afternoon campers
Well time is cracking on and we find ourselves almost into December. What a year we've had, I sometimes can't bear to think about it. But think about it I must, I'm compelled to reflect a bit. Particularly at those odd moments between being awake and falling asleep when I'm lying in bed. My mind is often overactive then. I sometimes torture myself with "what ifs" - pointless really because I will never know the answer to a "what if" because we don't get a sliding doors moment in real life to test it out, that's not how it works. Still, I wonder these things usually late at night after a glass of wine. How different could it all have been?
Sounds pessimistic, and I'm not actually a negative person. I'm more of the assumption that the glass is always at least half full (particularly when it comes to wine hehe) and this has been the case throughout Niamh's treatment. We have always looked for the postives in everything the doctors have told us. Chemo didn't work.....ok, sounds bad on first hearing it. However, it will have done its job in stopping the cancer spreading (so far so good) - it just wasn't affecting the tumour at all (which can be for a variety of reasons that I don't have time to list). It got knocked on the head and we moved straight on to proton therapy which looks to have been a success.
Oh, and while you wouldn't wish this experience on anyone, I can't even begin to tell you about all of the wonderful and fantastic families we have met on our journey. Some of the support I've had in my darkest of times has been amazing. Talking to people who truly know the despair and desperation you feel when your child is diagnosed with cancer is utterly invaluable. I can't put a price on that sort of support - it's priceless. We have laughed and cried together often, through thick and thin, ups and downs, tragedy and good news. There are always there with advice and a listening ear - however mundane I think my question is, however stupid it sounds, they are there with a "It's OK hun!" or a "WTF are you on?"..............usually the latter, but that's fine! I've no doubt I'd be rocking in a corner somewhere by now if it wasn't for my wonderful oncology friends. I thank them for that. I owe my sanity to them (and of course to my husband who's level headedness, positivity and logic has brought me down from blind panic many times)
And so, Niamh had her port-o-cath line out and all is well, it took most of the day for the sake of about 30 mins in theatre in total followed by Niamh being very grumpy afterwards for a couple of hours. Intolerant, cheeky and contrary........and that was just Paul when he came to pick us up, Niamh was a nightmare hehe. She requested all sorts of food (typical Niamh) but was forced to settle on the tried and tested hospital staple - toast. Althought they did stick a bit of grated cheese on it for her, it wasn't exactly Welsh Rarebit hehe but, it was a start. My dad would've liked it because it was mild cheddar (that's about as exciting as he goes cheesewise) Niamh perhaps would've preferred a more mature cheese perhaps Cathedral City or something like that being a discerning foodie these days but hey ho.
So, a new chapter is beginning for us - roll on 2013, when hopefully she will go from strength to strength. This weekend we are heading off for a weekend away in a lodge with a hot tub (at Niamh's request) and look forward to lounging in it with a glass of wine (Shloer for the kids) and freezing our faces off whilst looking at beautiful scenery - rolling hills and lochs.
I'll leave you with a pic of Niamh, Conor and Paul swimming with Pebbles whilst we were in Florida over the Summer. I love Conor's face on this photo and think it's a great natural pic.
Until next time.............