So it's been a while since I posted up a blog post. I regularly update my All About Niamh Facebook page and Twitter (well Twitter when I remember actually) so more recently the blog has been sidelined a bit. If you wish to "like" our page then the link is
I will be using this FB page to update about Niamh more frequently, posting photos and info. As you know, we are going on a Disney Cruise round the Med with Make-A-Wish charity. We actually go in less than two weeks time now so follow my page for a glimpse of that adventure. Our wish pack came earlier this week and Niamh could hardly contain her excitement.
However, Thats not our only piece of good news. We also want to share some even better news with you all. Niamh had her third post treatment MRI last week (she has them six monthly) and on Friday we were given the news that it was clear. No change and no concerns. She also had a lovely clear chest X-ray. This means that she is now in her 10th month being cancer free and in remission. We are thrilled obviously, she is going from strength to strength and making steady progress towards getting back to normal (or a version of a new normal)
Scans are always nerve wracking - it doesn't seem to be getting any easier but, the further away you get from treatment. The less likely it is that the cancer will return. It's always on your mind, like an unwelcome visitor. Creeps up on you when you least expect it. The lead up to the scan is frightening then the wait for results is awful. Amongst us cancer parents, we call it scanxiety which is the perfect term for it. The relief is all consuming when you hear the words all clear - still in remission.
Niamh and Conor celebrated with an ice cream from Lucas in Musselburgh.
Paul and I celebrated with a bottle of wine. I don't have a photo of that - sorry.
And so, we prepare to move into another school year. Niamh is nervous (we expected that) but she is stoic and tenatious and she will step up to the challenge of a new year and all the new experiences and tests it throws up for her in this next chapter of her life.
I'll leave you will a little picture I made showing you how far she's come in a year. We are so very proud of her and all she's achieved, how she's dealt with the cancer curveball she was thrown and how she kept smiling throughout. It's not easy dealing with the "after cancer" bit for her, she has missed alot with her peers - socially. She has side effects from her treatment and also bad nerve damage sustained from tumour pressure but, she's dealing with it. She's trying her best and we can't ask for more than that.
Next stop........Disney Cruise